As you may, or may not know, I have been living with Functional Neurological Disorder for the past 15, almost 16 years. Although many have not heard of it, It actually affects between 50,000-100,000 in the UK alone (FND Hope, 2023)!
This condition has the uncanny ability to imitate neurological symptoms seen in conditions such as Multiple Sclerosis, Parkinson's, Stroke, and more. For me, it leads to problems like paralysis, spasms, vision loss, cognitive impairments, muscle weakness, tremors, and others. Dealing with it can truly be a daunting experience.
Nevertheless, it should not dictate our identities or determine the way we lead our lives.
Sometimes I look like this:
But the majority of the time I look like this:
Perhaps not in snowy conditions all year round, but I hope you understand the point I am trying to convey.
There is a clear distinction between the two photos. The first image displays my condition visibly, yet the reality was far worse in the second photo.
In the first photo, I was unable to feel or move my legs, which was incredibly frustrating. However, having coped with FND for a long time, I am aware that this will pass, and I am thankful when it does.
In the second picture, I couldn't (and still can't) feel my feet, my left leg was experiencing continuous spasms along with the left side of my back. Despite being in immense pain, I refused to let this situation spoil our family holiday.
When dealing with FND (and many other conditions), our mindset plays a crucial role. It would be easy to give up entirely - believe me, I understand, as I have come very close to doing so.
I hope that my 5 tips for managing Functional Neurological Disorder can be of assistance.
Tip #1 - SQUAT!!!
The importance of squatting cannot be emphasized enough. Whether it's an air squat, box squat, or weighted squat, the key is to keep practicing. Essentially, a squat involves the basic movement of standing up and sitting down. Functional movements play a vital role in the recovery process, as without muscle memory, the time needed for recovery significantly increases.
Tip #2 - Move, Move and Move Some More
FND disrupts the neurological connections between the brain and the body. When you sense an 'episode' approaching, make an effort to prevent the blockage of these pathways. If you start to experience numbness in your legs, try exercising on a Cross Trainer to keep them active. In a hospital setting, you may have access to a MotoMed machine, which automates leg movements and played a key role in my rehabilitation.
If you cannot access the above, you can also use a bathrobe belt to wrap around your feet and imitate movement.
Just make sure, you begin the fight and keep moving.
Tip #3 - Be Aware of your Breath
Being mindful of your breath is essential for soothing the nervous system. Engaging in breathwork every day can greatly impact your overall well-being.
Focus on the natural rhythm of your breath. Instead of trying to regulate it, simply notice the feeling of each breath. If your mind starts to wander, gently guide your focus back to your breath.
(FND Hope UK, Accessed 2024)
Tip #4 - Practice Gratitude
Dealing with FND can feel like a lot to handle. Nonetheless, there are many reasons to feel thankful.
By embracing gratitude, you can take small measures to enhance your emotional health, aiding in your ability to navigate life's obstacles.
Every morning, set aside 10-15 minutes just for yourself. Hydrate with a generous glass of water and take a moment to acknowledge your emotions. Jot down one thing you appreciate each day.
As we actively seek out the bright spots in life, they start to manifest as reality.
Tip #5 - Find Your Community
My community was born out of movement for me. I became a member of CrossFit 57 North in 2022 during a challenging period in my life. Through my involvement in CrossFit, I have discovered a supportive group of individuals, enabling me to work out without judgment regardless of my physical condition.
WheelWod collaborated with CrossFit for the Adaptive Games this year, offering a platform for more than 15 divisions of adaptive athletes. The adaptive community is truly remarkable, filled with incredibly inspiring individuals. I highly recommend connecting with your local box (CrossFit Gym) as this experience has been transformative for me.
The most difficult part was taking that initial 'step'.
Do your best, by you, as you can, for that day.
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